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Chill Lab - Children’s Healthcare, Illness, Legacy and Loss

Publications

Jones, M.T., Albanese, E.A., & Boles, J.C. (in press). “They were here, and they still matter”: The legacy experiences and perceptions of bereaved parents. Manuscript accepted for publication in Palliative Medicine.

Keller, B.P., & Boles, J.C. (in press). Child life services for siblings of children who are chronically ill. Manuscript accepted for publication in The Journal of Child Life: Theory and Practice.

Boles, J.C., Woodburn, A.E., Wilson, S.E., & Betters, K. (in press). An evidence-based protocol for sensory soothing in the pediatric intensive care unit. Manuscript accepted for publication in Nursing in Critical Care.

Boles, J.C, Turner, J., *George, M., & *Wheeler, I. (2023). “Working with what you have”: Hospital-based group play programs in North America. Child & Youth Services.

Dunbar, J. E., Jones, M. T., & Boles, J. C. (2022). Hospitalized children’s perceptions of legacy: ‘A symbol of yourself that you leave behind.’ Child: Care, Health and Development. https://doi.org/10.1111/cch.13068

Goldberg, J.M., Rose, K.R., Matthews, O, & Boles, J.C. (2022). “Little time, lasting impact”: Bereaved caregiver perceptions of legacy in perinatal and infant loss.  Journal of Neonatal-Perinatal Medicine.

Lawrence, A., Jones, M., & Boles, J. (2022). Helping children cope with loss: Legacy interventions for the grieving classroom. Continuity in Education, 3(1), 92–100. DOI: http://doi.org/10.5334/cie.45

Jones, M.J., Boles, J.C., Dunbar, J.E., & Cook, J.L. (2022). Parent/caregiver perceptions of legacy in the hospital setting: A qualitative study. Pediatric Nursing, 49(2) 89-102.

Goldberg, J.M., Duplechain, A.C., Fraser, C.E., & Boles, J.C. (2021). An interdisciplinary hospital-based committee to improve pediatric bereavement care. Hospital Pediatrics, 11(11).

Boles, J.C., Potter, C.M., & Mora, K.L. (2021, Spring). Family-centered engagement in ICU liberation: The contributions of Certified Child Life Specialists.  Critical Connections, 28-30.

Boles, J.C., & Jones, M.T. (2021). Legacy perceptions and interventions for adults and children receiving palliative care: A systematic review. Palliative Medicine, 35(3), 529-551.

Boles, J.C., & Turner, J. (2021).  Empirical evolution of child life from 1998-2017:  A scoping review of child life content in published research. The Journal of Child Life: Psychosocial Theory and Practice, 2(1), 1-10.

Jones, M., Kirkendall, M., Grissim, L., Daniels, S., & Boles, J.C. (2020).  Exploration of the relationship between a group medical play intervention and children’s preoperative fear and anxiety. Journal of Pediatric Health Care, 35(1), 74-83.

Grissim, L., Kirkendall, M., Jones, M., & Boles, J.C. (2020).  Group medical play and children’s self-reported fear in the pre-operative setting. The Journal of Child Life: Psychosocial Theory and Practice, 1(2), 7-15.

Boles, J.C., Jones, M.J., Dunbar, J.E., & Cook, J.L. (2020).  Defining legacy: The perceptions of pediatric healthcare providers.  Clinical Pediatrics, 59(11), 1004-1010.

Turner, J., & Boles, J.C. (2020).  A content analysis of professional literature in the Association of Child Life Professionals’ Focus: 1999-2019.  The Journal of Child Life: Psychosocial Theory and Practice, 1(1), 7-16.